About CCI Support
Welcome to the Complex Chronic Illness Support website. Our vision is to “Empower People Towards Wellness” and our purpose is to improve the quality of life of people who suffer from a complex chronic illness, as well as that of their loved ones.
With our support people with complex chronic illnesses can, in time, develop an increased ability to participate in family, social and community life, and lead a life that is fulfilling and meaningful for them.
We provide many resources to our members including our innovative award-winning “Towards Wellness” Programme. We work with our members, their families and their community providing practical tools and developing strategic plans on how to find their next steps towards wellness.
Illnesses We Support
Chronic Fatigue Syndrome (CFS/ME)
ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome, has been described as an abnormal immune system response to any number of infectious or environmental triggers, causing a long term illness that can result in significant disability.
Main symptoms include:
- Persistent and overwhelming fatigue
- Post-exertional malaise (PEM)
- Muscle and/or joint pains
- Cognitive dysfunction – impaired memory & concentration
- Sleep disturbance
- Digestive problems
- Sensitivities to light and sound
- Sore throat and/or enlarged lymph nodes
- Dysregulated temperature control – fever/chills
- POTS / Orthostatic intolerance – erratic heart rate, feeling faint or dizzy upon standing
- Anxiety and/or irritability
The points around the body are:
- Back of the head
- Area between the shoulders
- Front of the neck
- Top of the chest
- Outside of the elbows
- Top and sides of the hips
- Insides of the knees.
Postural Orthostatic Tachycardia Syndrome (POTS)
Main symptoms include:
- Lightheadedness and fainting
- Heart palpitations
- Exercise intolerance
- Diminished concentration
- Tremulousness (shaking)
- Coldness or pain in the extremities
- Chest pain and shortness of breath.
Qualified Support Field OfficersTo work with each member providing education and assistance in actively managing their illness and improving their well-being.
Towards Wellness ProgrammeThe best of research-based knowledge into an easy-to-understand package to help sufferers begin to find their next steps towards wellness.
AdvocacySupport for meetings with health practitioners / WINZ / family members.
Group SeminarsVarious guest speakers, presentations, events.
Group Support MeetingOpportunity to have monthly group catch-ups with our Field Officers and other members to share ideas and support one another.
Bi-monthly NewsletterLinking to the latest research and programme information.
On-site LibraryWhere members and whanau can do their own informed research.
Towards Wellness Programme
To learn foundation principles to assist participants to navigate the ME/CFS/FM journey and create an individual road-map to support increasing health and wellness.
Endorsed by NZ’s leading authority on CFS/ME in NZ, Doctor Ros Vallings.
Course StructureTwo hours fortnightly (in total 10 workshops) based at the premises of Tauranga Counselling Services, with a follow-on 5 workshops to reinforce key learnings and equip participants with the skills to run their own group independently moving forward.
- Tina Richards (Field Officer)
- Kira Follas (Field Officer/Qualified Counsellor)
- Nutritional Coach
- General Practitioner
Towards Wellness - Series One
- ME Basics 1 – Understanding the Condition
- ME Basics 2 – Systems & Phases
- Pacing – Balancing Activity & Rest
- Stress Management – Calming a Maladaptive Stress Response
- The Journey of Acceptance
- Pain Management / A GP’s Perspective
- Nutrition / Gut Health
- Restorative Movement
- Sleep / Building Your Support Network
- The Foundational Principles to Support Healing
Towards Wellness - Series Two
- Mind-Emotion Connection
- Healing vs Stressed States
- Resting as a Strength
- Expressing Your Needs
- Continuing independent group work moving forward
Meet Our Team
Michelle Fraser Manager
Tina Richards > Field Officer
Kira Follas > > > Field Officer
Hi, I’m Kira and I work in service delivery at CCI Support, I also oversee and facilitate the Towards Wellness Programme. As a recoveree of ME/CFS/FM I believe in the possibility for healing and wellness with the optimal conditions in place.
Elizabeth McGougan - EBoP Field Officer
Jeremy Nixon – IT Support
Bradley Simmonds – Fundraising & Research
Joanne Palmer Accounts & Administration
Hi, my name is Joanne Palmer. I am the office administrator at ME/CFS Support (BoP) Inc.
Initially I joined the team in March 2015 as a volunteer for a few hours a week and the hours steadily grew.
Barbara Whitton President
Jean Scoullar Vice-President & Treasurer
Jacqui Bassett Board Member
Steve Napier Board Member
Hi, I’m Steve Napier. I have been a professional director since 2010, after previously being a share-broker and fund manager.
After having three separate experiences of ME/CFS and gaining an appreciation of the difficulties faced with this illness, I was keen to help out with governance at CCI Support, as a way of helping people with complex chronic illnesses within our community.
Andrea Macfarlane Board Member
Pauline Pibworth Board Member
Hello, my name is Pauline Pibworth. I have worked as the Manager of Tauranga Citizens Advice Bureau and held Secretarial and Administrator roles in local government, Teachers College, chartered accountants and a health clinic here in N.Z. and the U.K. I believe in the power of community groups and have held volunteer positions with Manawatu Samaritans, Volunteering BOP, Waipuna Hospice and the Cambodia Charitable Trust.
A Special Thank You to the Legacy Of Nicola Evans
Nicola Evans Artwork – Gift Card Packs Available
With kind permission from the Evans family, a selection of Nicola’s artworks has been reproduced in card form.
Working closely with the Evans family on the production of these cards, Complex Chronic Illness Support feels honoured to have been part of this journey with them.
There are three distinct sets of gift cards available for sale, each with six different prints. The cards are blank on the inside for your own personal message.
It was Nicola’s wish to leave an ongoing legacy to CCI Support through her artwork. All sales proceeds are donated to the organisation, to enable us to continue supporting those who suffer with complex chronic illnesses.
Gift card packs are priced at $15.00 each (plus postage)
To order packs of cards, please email us with your details and order to…
Complex Chronic Illness Support Incorporated is a registered charity supporting people with complex chronic illnesses. We rely on the generosity of funders and donations to continue to support and help improve the quality of life of our members, their caregivers and family/whanau.
We are approved by Inland Revenue as being for charitable purposes, so any donation of $5.00 or greater qualifies to be included in your annual tax return as a rebate.
To make a donation via internet banking, our details are:
Account Name: Complex Chronic Illness Support Inc.
Account Number: 38-9014-0140507-00
Or, we can also accept donations in person, or you are able to post your donation by cheque to:
Complex Chronic Illness Support Inc.
56 Christopher Street