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Goodfellow Unit: the impact of Myalgic Encephalomyelitis/CFS on young people.
https://www.goodfellowunit.org/podcast/myalgic-encephalomyelitiscfs?fbclid=IwAR3hrnNBSwuN1WYHHWJgCMsIt8sTRfaadF_-dOtXSvihG8Q_A29VwSELVHY In this episode Dr Cathy Stephenson and Rose Silvester discuss the impact of Myalgic Encephalomyelitis/CFS on young people. Take...
Griffith University: Brain similarities for long COVID, chronic fatigue syndrome
https://news.griffith.edu.au/2023/03/14/worlds-strongest-mri-investigates-covid-and-myalgic-encephalomyelitis-chronic-fatigue-impacts-on-the-brain/ Dr Sonya Marshall-Gradisnik, Director of Griffith’s National Centre for Neuroimmunology and Emerging Diseases and also...
Brainstem volume changes in ME/CFS and long COVID patients
Key findings ME/CFS and long COVID patients had larger than normal volumes of several areas of the brainstem These volume changes correlated with clinical measures of pain and breathing difficulty...
Systematic Review of Mind-Body Interventions to Treat ME / CFS
Written by S K Arestani, M Karkhaneh, E Stein, S Punja, D R Junqueira, T Kuzmyn, M Pearson, L Smith, K Olsen & S Vohra, 2021 The mind body connection is essential to grasp, if most people are to make significant progress towards wellness. There is no known cure...
A Burning Question: Can Niacin Help Mitochondrial & Blood Vessel Issues in ME/CFS, FM and long COVID?
By Cort Johnson, Health Rising, April 2022. Some people intermittently experienced significant periods of mental clarity and energy improvement while using niacin, which may or not be associated with the flushing that some forms of niacin produce. Niacin (Vit B3) in...
RNZ: 300,000 cases of long COVID – Study
Full article: https://www.rnz.co.nz/national/programmes/ninetonoon/audio/2018875322/300-000-cases-of-long-covid-study New research conducted for the Ministry of Health estimates around 300 thousand New Zealanders may have Long Covid, and reccomends the establishment...
Increase Risk of POTS after COVID
Overall, the study findings showed that new-onset POTS diagnoses and POTS-related diagnoses occurred more frequently following COVID-19 vaccination as compared to the pre-vaccination period.
Nevertheless, the rate of new POTS diagnoses was more than five-fold greater post-COVID-19 as compared to that following vaccinations.
Risk of Debilitating Illness from Long-COVID Could Grow
An article published by Radio New Zealand on the 17th of January, has highlighted that the risk of Kiwi’s developing chronic and debilitating illnesses from long-COVID could grow as more people are becoming re-infected.
Long read: The rolling maul of Long Covid
As reported by Mark Daalder of Newsroom (Updated 26 December 2022), tens of thousands of New Zealanders have Long-COVID. Soon, they'll seek care from a crunched health system unequipped to help them and financial support from a Government which has closed its wallet....
An Update from Ron Davis and Janet Dafoe: The Neutrophil Study
Please watch this video from Ron Davis and Janet Dafoe - This could just be the next new exciting research to watch unfold!
Feel Like You’ve Run a Marathon? A Long COVID Study Suggests Why
People with Chronic Fatigue Syndrome (ME / CFS) have often said that they feel like they’ve run a marathon despite the fact that they haven’t done any exercise at all. That idea has never been put to the test in ME / CFS but it recently came close in long COVID. A...
RNZ: Getting chronic fatigue recognised as an disability
Full story: https://www.rnz.co.nz/national/programmes/afternoons/audio/2018859472/getting-chronic-fatigue-recognised-as-an-disability A petition being read in Parliament today is urging the Government to recognise chronic fatigue as a disability in order to be...
Stuff: Chronic fatigue sufferers call for condition to be reclassified as a disability
ME / CFS is currently classified as a chronic illness which creates limitations with the support people effected by the illness are able to access. This week the Associated New Zealand ME Society submitted a petition to Parliament calling for ME / CFS to be...
Preventing Long COVID
Written by Rosamund Vallings MB BS, featured on www.anzmes.org.nz We know that any viral illness will be followed by a post-viral phase. During this time the body is theoretically in “recovery mode.” Even after a simple cold, a person can be left feeling...
Long Covid Kids
Long COVID kids is a organisation based in the UK who have developed a fantastic resource for children suffering with Long-COVID. The information they have provided goes a long way in explaining the condition and is an ideal resource for Long-COVID in general. For...
Stuff: Long Covid will be one of this generation’s disability challenges – Commissioner
The ongoing burden of long Covid will be one of this generation’s disability challenges, the Disability Rights Commissioner says. Many people with long Covid are likely to meet the “definition” of disability, Tesoriero said. Support needed to be based on need, not the...
Stuff: Here comes the long-Covid tsunami
Article Written By: Stuff science columnist Dr Siouxsie Wiles. Diagnosis of ME/CFS is challenging and generally requires people to have experienced symptoms for six months. With the pandemic in its third year, many people with long-Covid are now meeting the diagnostic...
ODT: Long Covid link
Otago research has established that Long Covid patients have an almost identical chemical composition to people with myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). Those conditions had been dismissed and labelled a psychological ailment for many years...
RNZ: How to tackle the Long Covid threat, and how not to
Full Article written By Patrick Hadfield - ME Auckland Post-infectious illnesses are not new. In fact, I'm writing this because 12 May is ME/CFS Awareness Day - a day chosen as it marks Florence Nightingale's birthday. The famous nurse was thought to have developed...
Waiting to Exhale
"Waiting to Exhale”: Breathing and Chronic Fatigue Syndrome (ME/CFS) By Cort Johnson More than half of our patients with FMS or CFS develop a disordered pattern of breathing. They take very small rapid breaths using the small muscles of their chest instead of slow,...
Did an Immune Hole in the Gut Open the Door for ME/CFS (and long COVID)?
by Cort Johnson | Apr 15, 2022 To view the full article click here https://www.healthrising.org/blog/2022/04/15/immune-hole-gut-chronic-fatigue-syndrome-long-covid/ The Gist: The Jason-Katz ME/CFS project’s unique asset – samples and questionnaires taken before...
1News: Advice being developed to help long COVID
We see it again, that Long COVID advice is still in the development stage in NZ. CCIS already supports people with Long COVID within our community. As well as those with ME/CFS relapse from COVID and ME/CFS symptomatology from the COVID Vaccine. But we are grateful...
The impact of COVID on people with ME/CFS
We have been very lucky in NZ that we haven't to date had the COVID spread like other countries. To this end though, we are also locally unaware of the effects of COVID on people with ME/CFS and have to look overseas for related data. The article linked below is in...
NICE Guidelines updated 2021
AN ME ASSOCIATION SUMMARY OF THE 2021 NICE CLINICAL GUIDELINE FOR ME/CFS The booklet features the main clinical recommendations from the guideline which we hope will be effectively implemented by healthcare providers as soon as possible. It has been written by Dr...
Chris Armstrong and the Hunt for the Metabolic Underpinnings of ME/CFS
Chris Armstrong PhD (biochemistry and molecular biology) was there at the beginning of the metabolomics field in chronic fatigue syndrome (ME/CFS). In fact, Armstrong was the lead author of the first ME/CFS metabolomics study published in 2012. Chris Armstrong and...
Research Update on Fibromyalgia (FM), 2021
Research Update on Fibromyalgia (FM), 2021 The Third International Virtual Congress on Fibromyalgia was held in June 2021. Eleanor Stein MD FRCP(C) was there and captures the essence of this new research. She states that latest research discusses Neuroplasticity and...
Graded Exercise Therapy and Cognitive Behavioural Therapy is OUT!!!
NICE have published their new #MECFS guidelines! Extracts from the Science for ME press release... "The National Institute for Health and Care Excellence (NICE, UK) has today, Friday 29 October 2021, published the guideline for #MyalgicEncephalomyelitis (or...
Final NICE ME/CFS Guideline Published
The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline. ME Action gives us the lowdown:
Over a third of COVID-19 patients diagnosed with at least one long-COVID symptom
37% of people had at least one long-COVID symptom diagnosed in the 3-6 month period after COVID-19 infection. The most common symptoms were breathing problems, abdominal symptoms, fatigue, pain and anxiety/depression. This new study from the University of Oxford and...
Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome (2019)
A great deal more is known today than 35 years ago about the underlying biology of ME/CFS. It is clear that many biological measurements clearly distinguish patients with ME/CFS from healthy control individuals. At the same time, some areas of ME/CFS research remain a...
Metabolic features of chronic fatigue syndrome
Metabolic features of chronic fatigue syndrome (2016) by Naviauxa, R. J. et al. Chronic fatigue syndrome is a multisystem disease that causes longterm pain and disability. It is difficult to diagnose because of its protean symptoms and the lack of a diagnostic...
RNZ: Long Covid short on Research
https://www.rnz.co.nz/programmes/the-detail/story/2018807667/long-covid-short-on-research From The Detail, 5:00 am on 12 August 2021 "Otago University’s Christchurch campus will look at 3,000 New Zealanders to see if they have been exposed to Covid and have developed...
Stuff: East Auckland physician’s quest to demystify debilitating illness
Howick physician Rosamund Vallings speaks to Meghan Lawrence about her new book The Pocket Guide to Chronic Fatigue Syndrome/ME. Full article can be found here: Stuff: East Auckland physician's quest to demystify debilitating illness
ME/CFS/FM Coronavirus Vaccine Side Effects Poll
The ME/CFS/FM Coronavirus Vaccine Side Effects Poll Update + the New Severely Ill Vaccine Side-Effects Poll Note the poll can be taken online and has been taken to find out how other people with ME/CFS and/or FM fared with their coronavirus vaccination in Health...
Long covid and vaccines
With governments worldwide under pressure to ease pandemic restrictions as vaccination rates rise and impatience with border restrictions grows, new threats become clearer....
The costs of long Covid
With governments worldwide under pressure to ease pandemic restrictions as vaccination rates rise and impatience with border restrictions grows, new threats become clearer....
YT: The Why, When and How of Pacing
This Video is useful for explaining pacing and understanding how to use pacing as a tool. This is a long, but good video - so please pace yourself through watching it. It's not overstating the fact to state that PACING is the singular most important management...
Stillness
Information sourced by Neurochild Community (18/7/2020). Science is now showing that stillness may be just what we need to regenerate our exhausted brains and bodies. The demands of modern life put a significant burden on the prefrontal cortex of the brain, which is...
Covid-19
NZ Covid Vaccine Below is some general advice on the Covid-19 Vaccine which Dr Ros Vallings spoke about during her presentation at the public talk held in Hamilton last month for the launch of CCIS Waikato. The entire meeting will be available on Video soon. Experts...
ME Association: COVID VACCINES AND ME/CFS
ME Association - based in the UK. May 2021 Update Having endured all the restrictions imposed by the COVID-19 pandemic for well over a year, we are now in a position where the country is slowly returning to some form of normal life. This is mainly due to the rapid...
Fibromyalgia muscle study suggests Mitochondria link:
Fibromyalgia research for many years has noted a change in the muscle tissue and this is being linked with more recent research on mitochondria function. Could the two be linked? These are the questions that Cort Johnson from Health Rising explores in this article...
Pathway to Prevent / Improve the Treatment of Deadly COVID-19 Infections Revealed in EpicGenetics-Funded Study of Thousands of Fibromyalgia Patients
LOS ANGELES--(BUSINESS WIRE)--A recently published study of thousands of fibromyalgia patients illuminates a pathway to preventing the life-threatening pneumonia, lung damage and immunologic complications that can be caused by a COVID-19 infection, according to...
Scoop: Long COVID In New Zealand – Expert Q&A
Scoop report into Long-Covid in New Zealand - 29/4/2021 - click to access the full article Emeritus Professor Warren Tate, biochemist, molecular biologist and ME/CFS expert, Brain Health Research Centre, University of Otago, comments: “In this pandemic, long COVID...
ME/CFS new information for General Practitioners.
There has been a flurry of activity in the media recently with Prof. Warren Tate, Dr Rosamund Vallings and others speaking with the media about new research in ME/CFS. The interest of the media has been piqued by Long Covid Syndrome which Dr Vallings suggests maybe...
Simply Living
I have been reading and thinking about slower living and how I can live a simpler lifestyle. I have been pondering on how to simplify routines and live a more peaceful existence. My first baby step is to stop writing to do lists, this seems so counterintuitive to me...
Dr Rosamund Vallings on Covid long-haulers and CFS-ME
Dr Vallings tells Nine To Noon that there are always people who will suffer long-term effects from a viral illness and it’s come to the fore because of the widespread nature of Covid-19. Dr Vallings on Radio New Zealand
Stuff: Kiwi researchers prove chronic fatigue syndrome is not psychosomatic
The Otago University Emeritus Professor has been on a 30-year crusade to learn more about the mysterious illness which struck his daughter Katherine at the age of 14. Original Article:...
NZ Doctor – Proof Chronic Fatigue Syndrome not psychsomatic
Media release from the University of Otago Original Article: https://www.nzdoctor.co.nz/article/undoctored/proof-chronic-fatigue-syndrome-not-psychsomatic
Chronic fatigue syndrome poorly recognised in NZ despite evidence
Original article appeared in the Otago Daily Times on 24 November 2020: https://www.odt.co.nz/news/dunedin/chronic-fatigue-syndrome-poorly-recognised-nz-despite-evidence Chronic fatigue syndrome has still not been well recognised by New Zealand health professionals or...
ME Association: Reducing the risk of Infection
In November 2020 the UK-based ME Association put together a very practical 10 point guide for people with ME/CFS to reduce the risk of infection of Covid-19. This FREE leaflet is all about staying safe during the pandemic and reviews personal hygiene measures, social...
