CCI Support Media
Helen Clark Foundation – Long COVID – are we taking it seriously enough
Post-meeting recording can be found here: Long Covid - are we taking it seriously enough? Wednesday 3 April, 12pm-1.15pm Join us for an expert discussion on long Covid. As the public focus on Covid-19 has waned and the public has largely returned to...
RNZ: Are insurers wrongly declining ME/CFS claims?
Full story: https://www.rnz.co.nz/national/programmes/ninetonoon/audio/2018932623/are-insurers-wrongly-declining-me-cfs-claims Some people with Chronic Fatigue Syndrome say they are being denied personal insurance because insurers deem it to be a mental health issue,...
ANZMES Awards NZ Academics 25K Grants to Boost ME Research
Two New Zealand researchers have been chosen to receive the Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) annual grant of $25,000 to undertake vital research into increasing understanding of Myalgic Encephalomyelitis (ME, also known as Chronic Fatigue Syndrome), in Aotearoa.
NZH: Woman who was accused of faking her illness dies
Tributes have poured in after Stephanie Aston, the young woman who publicly stood up for herself after being told she was faking her symptoms by doctors, has died. “Even until the very end she was keen to help anyone and lend an ear. You will be sorely missed. I hope...
Petition response: ANZMES welcomes Committee recommendations for improved access to disability services for people with ME / CFS
ANZMES, the National Advisory on Myalgic Encephalomyelitis (ME), has welcomed the Health Select Committee’s (HSC) response to its petition delivered in September 2022, calling on the Government to reclassify ME as a disability. The Health Select Committee presented...
Capsule: They said it was menopause – it is Long COVID
https://capsulenz.com/be/long-covid-gaslit/ Sadly, Sarah is one of the many, many women in New Zealand – and abroad – who are being diagnosed with Long Covid, and worse still, after very long periods of time, during which, many women are being gas lit about their...
RNZ: Prof Danny Altmann: the burden of long COVID
A scientific review of the world's research into long Covid carried out by a team of leading UK researchers has led them to declare the burden of the post-infection condition "so large as to be unfathomable". While the Australian government has allocated $50m for long...
The Press: ‘A shell of my former self’: Broadcast journalist Joy Reid’s battle with long Covid
Joy Reid is a “shell” of her former self. The broadcast journalist went from thriving on the adrenaline and fast-paced nature of news, to being unable to watch it on television. Reid has been off work for months with long Covid. Full article can be read here:...
RNZ: Long Covid and ME/CFS are the same illness, researcher says
Long Covid and ME/CFS (formerly known as Chronic Fatigue Syndrome) are effectively the same illness, according to a University of Otago researcher. Emeritus Professor Warren Tate leads a team at the University of Otago's Department of Biochemistry that has been...
RNZ: World ME Day
ME/Chronic Fatigue Syndrome has blighted the lives of millions across the world for many years, yet relatively little is known about the debilatating and complex illness. Dr Lynette Hodges lectures in sport and exercise at Massey University, and also researches...
PRESS RELEASE: World ME Day 2023
Contact: Complex Chronic Illness Support (CCI Support) 0800 224 787 www.ccisupport.org.nz [email protected] World ME Day asks you to learn about the broken energy system in ME/CFS Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
ANZMES: Petition for ME/CFS to be reclassified as a Disability
https://anzmes.org.nz/anzmes-speaks-to-parliament/?fbclid=IwAR1ItD4LR0LEkJVqfS0NwXr0lpj6GwgfSxph6zfCj4Asr7-8GZ_WQ849Q_c You can watch it here: https://fb.watch/khpmwwAaJR/ (minute: 39:29) CCI Support COMPLETELY supports ANZMES with this petition. Key points for you to...
Stuff: Young woman fed through straw, lives in darkness with chronic fatigue syndrome after Covid
Rebecca Cumming spends her days in bed, living in darkness and near silence, unable to have any conversation. It’s a stark change from a year ago, when the now-22-year-old had just finished university, scored a new job and spent her spare time tramping, cycling and...
RNZ: Long Covid: Up to 300k NZers may have post-viral illness
Something we hear all the time from Health Professionals: Where is the support for people with Long COVID? CCI Support can offer support on a 1:1 basis throughout New Zealand. One in five New Zealanders are experiencing Long Covid symptoms, a survey finds, as the...
1News: I lost my thirties to this illness
Full story: https://www.1news.co.nz/2022/09/25/chronic-fatigue-syndrome-i-lost-my-thirties-to-this-illness/?fbclid=IwAR2jJWlwWBpUla7tqOMlp65uH3UpkkdVZdWptt7bJHSJcCLRbazhuHRigbE 45,000 people in New Zealand live with ME/CFS (myalgic encephalomyelitis/chronic fatigue...
RNZ: Long Covid adds strain to Chronic Fatigue support services
Full Story: https://www.rnz.co.nz/national/programmes/checkpoint/audio/2018859506/long-covid-adds-strain-to-chronic-fatigue-support-services Long Covid has added strain to support services for those suffering from Chronic Fatigue Syndrome, amid calls for the condition...
RNZ: Getting chronic fatigue recognised as an disability
Full story: https://www.rnz.co.nz/national/programmes/afternoons/audio/2018859472/getting-chronic-fatigue-recognised-as-an-disability A petition being read in Parliament today is urging the Government to recognise chronic fatigue as a disability in order to be...
Health Navigator
Long-Term Conditions Virtual Forum 2022 Recorded On 11 Aug 2022 11:30 AM Recording can be found here: HEALTH NAVIGATOR The ongoing burden of long Covid will be one of this generation’s disability challenges, Paula Tesoriero, the Disability Rights Commissioner...
STUFF: ‘Be your authentic selves’: man’s final words spur fund to tackle chronic fatigue syndrome
A man’s final words have inspired a dedicated fund to tackle a debilitating health condition. Zascha Mann died in 2021 after a long struggle with chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis. His poignant final message urged people to...
Stuff: Chronic fatigue sufferers call for condition to be reclassified as a disability
ME / CFS is currently classified as a chronic illness which creates limitations with the support people effected by the illness are able to access. This week the Associated New Zealand ME Society submitted a petition to Parliament calling for ME / CFS to be...