CCI Support have been such an important part of my healing journey. I have had ME and fibromyalgia since 1997, and functional neurological disorder since 2007. And when I came across CCIS, I didn’t feel so alone. They helped me get a disability parking permit, which has helped me enormously with energy levels and with just feeling recognised as having a disability.
I have had lovely, supportive group sessions, and I think the most helpful thing was a conversation I had recently with Annabelle. She talked about the importance of micro-breaks and small steps we can take to improve our health. Now, I have researched everything to do with health for decades, but it was so incredibly helpful to have the information be up to date, well researched, and all in one place. She emailed it to me afterwards, and I now use some of the things we talked about every day.
CCI Support is an invaluable resource. I would feel less seen, less heard, and more alone without it. Please know that people who are living with complex chronic illness, and often invisible illness, do tend to feel invisible. Not a lot of people actually understand and recognise that it can be an incredibly lonely journey.
I really want to see CCI Support continue. In fact, I think it’s crucial for a lot of us. A lot of people with complex chronic illness fall through the gaps because they don’t have a ‘concrete diagnosis,’ but it is every bit as important. And CCI Support fill a gap that no one else can fill.
– Anna, CCI Support Member
