Member Voices
A look at life with chronic illness — the realities, the insights, the creativity, and the little glimmers that make a difference. Written by our members, in their own words and in their own way. If you would like to contribute to Members’ Voices, please contact [email protected].
Luisa’s Journey
Kia Ora beautiful members, and welcome to my blog! I have missed you all, and I wanted to share a little bit of my trip and what went on whilst I was away. I was lucky to be able to go away for a month to spend some quality time with my family. We went to America and...
When you grieve for what was…
Personal Story from one of our members. When you grieve for what was... 🙁 🙁 🙁 A couple of kind, enquiring messages from friends recently made me realise that I haven’t really posted much about my health and what’s been going on for the last year and a half, so I...
Recovery from Chronic Fatigue Syndrome: One Person’s Story
Bruce Campbell, PhD, founded the CFIDS and Fibromyalgia Self-Help Program (now known as the ME/CFS and Fibromyalgia Self-Help...
Local Focus: Living with ME / Chronic Fatigue Syndrome
"Chronic Fatigue doesn't do it justice." Made with funding from NZ On Air. Original Video and Article can be found here: NZ Herald By: Gavin Ogden Video Journalist, Tauranga, NZH Local Focus May 12 marks international ME Day, a day to promote awareness of the...
Sunlive – Living with chronic illnesses a daily battle
Article Written by Laura Thomson-Bache at TECT and Sunlive: Original can be found here: https://sunlive.co.nz/news/251026-living-chronic-illnesses-daily-battle.html There are tears in Arlene Olson’s eyes as she describes the past few years she’s been through. “My...
Morgan’s Musings – Pacing
Pacing I love swimming. Being in the water is like sweet relief for my body. I feel weightless and wonderful. Getting out is hard. It’s like walking into a solid wall. The air itself feels like molasses, and my body is barely able to hold itself up. Because swimming...
Morgan’s Musings – Reframing – language and thought
Reframing – language and thought Positive Reframing can be thought of as the skill of seeing the upside of every situation. Yes, a skill. And just like any skill, it can be learned. When this was first suggested to me, I thought “Nah. Nope… No. Way. My illness drains...
Local Focus: The heart-breaking experiences of mothers with ME
https://www.youtube.com/watch?v=14oT6mi8PVU "My little boy he just... It was really hard." The heart-breaking experiences of mothers with ME. Made with funding from NZ On Air. Full story can be found here: NZ HERALD Holly Rinii lives in Kawerau with her partner and...
The Beacon: Asking for help – Suzanne’s Story
Original Article can be found here: https://thebeacon.co.nz/2019/05/asking-for-help-suzannes-story/
