Waikato
Saya
Starting February 2025, until then, all contact details remain active and all members will be looked after by other Facilitators
Health and Wellness Facilitator
Tuesday to Friday 9am till 4.30pm
Phone or Txt: 022 154 7076
[email protected]
Support services for people in the Waikato affected by ME/CFS, were established by Frankie Letford in 1999. Frankie, who saw the need for this provided phone support, newsletters and organised support groups. For 10 years, Frankie coordinated this, as she was able to in a voluntary capacity with support from MS Waikato. With growth came the need to employ a support worker. For a further 12 years, ME/CFS and Fibromyalgia clients were then supported under the umbrella of MS Waikato.
During this time, the group continued to grow considerably, and recently sought to separate itself from MS Waikato to create their own identity. Following discussions with the Bay of Plenty organisation Complex Chronic illness Support Inc. (CCIS) an agreement was made and CCIS has welcomed the ME/CFS group into their midst. The CCIS model for service, is a better fit for supporting those affected by ME/CFS and allied conditions than under the MS umbrella.
“I have been attending the monthly Complex Chronic Illness Support group since March 2021 and I find very helpful not only finding out more about my illness but also talking to others with the same illness.
The facilitator, Tracey Larsen, is a wonderful and incredibly helpful person who has helped me enormously in the short time since my diagnosis.”
From MC.
July 2023
Kia ora and welcome from the Mighty Waikato!
Today, I am reflecting on how wonderful it is that people continue to reach out to us for support for their complex health conditions. It is always a humbling privilege to be invited into people’s lives and offer the support that we do.
But I just wish I could do more! I was hoping to win that $33M in Lotto this week. My oh my … What good could come out of that to help our community!! Home help would be at the top of my list! I am excited to share that I have a meeting coming up with Disability Support Link (DSL – Waikato DHB’s equivalent to NASC – Needs Assessment Services Co-ordination that is offered in other regions). I will be educating the staff about the impacts and difficulties our community face with the activities of daily living. I will be educating them about how many of you must weigh up what you spend your energy on each day. Will it be a shower today or a meal? A shower today or a trip to the GP? A shower today or change the bedding Will it be a shower today or a phone call with Mum?
The criteria for home help support is that there must be a need for hands-on personal care support (Showering). If we can demonstrate that members of our community require support with showering, then we can be considered for home help support. If you are delaying your showering because you must choose to spend your energy on something else, this can potentially be a foot in the door for home help funding. If you have any questions or would like a referral made to DSL, please be in touch with me.
Have a great day,
Tracey
P.S. I truly hope it was one of our community who won Lotto!!
Monthly Members Meetings
Is for all our members who want to attend a monthly meeting but do not have the extra energy to leave their homes
Currently, all Monthly Member Meetings are held online. We welcome you to join us - if you need support getting online, please contact your facilitator and we can have a practice prior to meeting time so that you feel more comfortable on the day.
Social Groups
Hamilton
Young Ladies Hamilton Group
1st Thursday of the month – 1pm
Venue changes so keep an eye on emails and face book.
Te Awamutu
Te Awamutu group meet on the third Thursday of the month. We meet in the afternoons in colder weather and at 10.30am during warmer months.
The venue changes each month, so watch for emails and check the facebook group for updates