CCI Support Blog
The CCI Support Blog is a look at life with Chronic Illnesses written in an informal or conversational style. If you would like to contribute to this blog, please contact your Health and Wellness Facilitator.
“Before I Got Sick” – A Poem by Frances Hellendoorn
Before I got sick, I did not realise we had birds in our garden. I did not know that the myna has a hilarious bob in his song. That my ‘happy place’ bird from my childhood is a barbary dove and likes to ‘hang out’ on the power lines and gutter opposite our house in...
“Invisible Dragons” – A Poem by Frances Hellendoorn
Everyday I fight Invisible Dragons. My disability fences me in. But to all but a few the fences are invisible. I sat on the store furniture because I could not walk all the way around the store. No customer courtesy chair was provided. I am not old, although I...
Tapping – Shifting the Urge to Rush into a Calm, Healing State
By Annabelle Tapping or EFT (Emotional Freedom Technique) is a self-help technique designed to reduce stress/anxiety. It involves gently tapping specific points on the face and body while focusing on the emotions or stress you wish to let go of. EFT may help in...
“The Rongoā of Presence” – A Poem by Phil
There is a quiet strength in being with what is. Not to fix or rush, but to simply acknowledge. This presence is a kind of rongoā (medicine) — soft, patient, and deeply human. 🌙 May you find comfort in your capacity to sit with truth, and return to yourself...
Through the Grapevine – October 2025
As some of you may remember from previous blogs etc. Rachel Riggs’ cookbook is shaping up to be an uncomplicated, allergen-aware cookbook. After a recent catch up, Rachel who has been living with ME/CFS for 21 years -- the last twelve of them housebound -- really...
“The Trying Place” – A Poem by Phil
You’re trying. Of course you are. That’s what you’ve always done. Trying to feel better. Trying to be present. Trying to do it right. Trying not to try too hard. (That one’s tricky.) You carry so much hope in your effort. But maybe it’s time to rest the effort, too....
October is Dysautonomia Awareness Month
Mindfulness Matters
By Tania Recently I’ve been taking a deep dive into mindfulness. Mindfulness can mean different things for different people, but for me it means tuning into what my body is telling me and pausing more often to notice what is going on around me. Interestingly, I am...
Severe ME/CFS – Writing by Raquel E. Parackal
ME/CFS is the merciless unravelling of your humanity — where even the simplest acts, like speaking, sitting up, or thinking, become impossible mountains to climb. In its severe form, it traps you in darkened rooms, silences your voice, and steals the very sensations...
AGM 2025
AGM ONLINE - Saturday 13th September 2025 at 10.30amDocuments for the AGM are available belowThe changes to the constitution include changing the words Executive Committee back to Board.Proxies If you are unable to attend the meeting, you may appoint a proxy to attend...