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CCI Support Blog

The CCI Support Blog is a look at life with Chronic Illnesses written in an informal or conversational style.  If you would like to contribute to this blog, please contact your Health and Wellness Facilitator.

Poem – The Path Forward is not Back

By Phil Jones There comes a moment on the healing pathwhen we realize —we're not going backto who we werebefore the crash, the illness, the unraveling. And maybe… we're not meant to. Because who we werewas often surviving on momentum,living with our foot pressed to...

Through the Grapevine – June 2025

Over the past little while there have been more and more members mentioning various podcasts to me that they have found interesting.   It seems this is a whole new world that I’m not tapping into as much as I could be! I have started searching various...

My Story of Parenting with Long COVID

This is my story of being a dad to two young kids while having long COVID. It's a thank you to my wife, and to the many people who have helped us. Also, it's sharing some thoughts on the things that got us through. I’ve had long COVID for two and a half years now. In...

Bilateral Audio Stimulation

Bilateral audio stimulation for regulating the nervous system I have been using bilateral stimulation audio for a while now and think it is helping – my heart rate seems much more balanced since using it, I find it easy, non-stressful and can do while resting or while...

Video: ME/CFS by SciShow

A short evidence-based video on MECFS and long Covid by SciShow. This video covers post exertional malaise (PEM) and why GET does NOT work and should NOT be recommended for those with Myalgic Encephalomyelitis and long covid and discusses the flaws and...

Take a moment

Blog by Phil Mindset: The Lens Through Which You See the World Have you ever stopped to think about how your mindset affects everything you do? It’s the lens through which you view the world, and it shapes your thoughts, emotions, and actions—whether you realise it or...

Hero’s journey

By PhilLife’s journey can often feel like a winding path filled with unexpected twists and turns. For those navigating the challenges of chronic illness, this journey can resemble a hero’s quest—one filled with trials, lessons, and ultimately, profound transformation....

When Good Things Are Scary

by Rebecca Erlewein I recently had an easy appointment with my extremely gentle dental hygienist, and it threw me completely off balance. Not because it was terrible, but because it wasn't. For the first time in my life, my body and mind remained relaxed while someone...

Kia ora and Welcome from the Mighty Waikato. We are in the last quarter of the year and are sliding very quickly towards Christmas and summer holidays. Spring is well and truly springing - the blossoms are out, the leaves are forming, the weeds are growing, the wind...

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