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CCI Support Blog

The CCI Support Blog is a look at life with Chronic Illnesses written in an informal or conversational style.  If you would like to contribute to this blog, please contact your Health and Wellness Facilitator.

Tracey’s Journey of Self-Discovery

Many of you know that I have been supporting the ME / CFS / FM community for nearly 10 years now and I think it is fair to say that I know a little bit about how to live with these complex conditions we support. However, this year, I have learned the difference between knowing something at an academic level and knowing something through a lived experience.

AGM 2023

AGM ONLINE - Saturday 28th October at 10.30amDocuments for the AGM are available belowPlease note: the SGM has been postponed till another time. As has the AGM for the ME/CFS Support (BOP) Charitable Trust.Proxies If you are unable to attend the meeting, you may...

The Awareness Project

Recently, we asked our members to share their experiences while living with a chronic illness, to educate the public and for people to understand they aren’t alone with their feelings. If you would like to share your story in a statement or small blog so that we can...

Annabelle’s European Adventure

After my recent visit to Rome (Italy) during my European trip, I thought it might be interesting to talk about the most impressionable historic site I visited. While walking around Rome, there is an unbelievable historical site just waiting for you around every...

UoA: Long COVID registry

Studies show that around 10–20% of people infected by COVID-19 may go on to develop long COVID. The University of Auckland has developed a Long COVID registry.  We recommend that people with Long COVID log themselves as having Long COVID in this registry. We hope this...

Hidden Disabilities Sunflower

The Hidden Disabilities sunflower scheme is an international approach which is recognised by airlines (Including Air New Zealand) and a growing number of airports, tourism attractions and accommodation providers. It is a simple tool for you to voluntarily share that...

YouTube: Unrest Documentary

Jennifer Brea's Sundance award-winning documentary, Unrest, is a personal journey from patient to advocate to storyteller. Jennifer Brea is working on her PhD at Harvard and about to marry the love of her life when she’s struck down by a mysterious fever that leaves...

ANZMES: Know ME series

Announcement – new CME accredited ME/CFS education series for health professionals ANZMES is excited to announce a new CME accredited education series for health professionals, providing monthly news, articles, and podcasts with the latest evidence based information...

Listening to Families: Videos on ME/CFS

Listening to Families ME/CFS videos A resource for families exploring ME/CFS for their children It can be bewildering when a child or teenager does not recover as expected after a viral infection and remains very unwell. If your family is exploring a diagnosis of...

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