CCI Support Blog
The CCI Support Blog is a look at life with Chronic Illnesses written in an informal or conversational style. If you would like to contribute to this blog, please contact your Health and Wellness Facilitator.
Mindful Keys to Living with Chronic Fatigue: From Overwhelm to Inner Steadiness
To live mindfully with Chronic Fatigue Syndrome is not to push or strive—it’s to soften. It’s about learning to meet yourself, again and again, in the truth of each moment—with gentleness, presence, and deep respect for your body’s limits. Pause Gently. Often Create...
”Meeting Fear” A Poem by Phil
The fear came—that’s what fear does sometimes.It arrived like weather—uninvited, real. It wasn’t mine to control.But how I met it—that was mine. So I paused. Yes, I flinched at first.Old habits stirred.But then I remembered—I could choose to stay. I didn’t need the...
In Loving Memory of Linda Derrick
It was with great sadness to learn of the passing of Linda on 2nd July 2025. Linda has been a member of CCI Support since the Waikato region was amalgamated with the organisation in April 2021. Prior to that she was an active member of the ME/CFS & FM community in...
Everything I learned I learned from books Some of you may know, because I harp on about it constantly, that I’m a big fan of science fiction author Becky Chambers. In particular, A Psalm for the Wild-Built holds a special place in my heart, because it helped me...
Poem – The Path Forward is not Back
By Phil Jones There comes a moment on the healing pathwhen we realize —we're not going backto who we werebefore the crash, the illness, the unraveling. And maybe… we're not meant to. Because who we werewas often surviving on momentum,living with our foot pressed to...
Through the Grapevine – June 2025
Over the past little while there have been more and more members mentioning various podcasts to me that they have found interesting. It seems this is a whole new world that I’m not tapping into as much as I could be! I have started searching various...
My Story of Parenting with Long COVID
This is my story of being a dad to two young kids while having long COVID. It's a thank you to my wife, and to the many people who have helped us. Also, it's sharing some thoughts on the things that got us through. I’ve had long COVID for two and a half years now. In...
Bilateral Audio Stimulation
Bilateral audio stimulation for regulating the nervous system I have been using bilateral stimulation audio for a while now and think it is helping – my heart rate seems much more balanced since using it, I find it easy, non-stressful and can do while resting or while...
Video: ME/CFS by SciShow
A short evidence-based video on MECFS and long Covid by SciShow. This video covers post exertional malaise (PEM) and why GET does NOT work and should NOT be recommended for those with Myalgic Encephalomyelitis and long covid and discusses the flaws and...
Take a moment
Blog by Phil Mindset: The Lens Through Which You See the World Have you ever stopped to think about how your mindset affects everything you do? It’s the lens through which you view the world, and it shapes your thoughts, emotions, and actions—whether you realise it or...






