CCI Support Media
1News: I lost my thirties to this illness
Full story: https://www.1news.co.nz/2022/09/25/chronic-fatigue-syndrome-i-lost-my-thirties-to-this-illness/?fbclid=IwAR2jJWlwWBpUla7tqOMlp65uH3UpkkdVZdWptt7bJHSJcCLRbazhuHRigbE 45,000 people in New Zealand live with ME/CFS (myalgic encephalomyelitis/chronic fatigue...
RNZ: Long Covid adds strain to Chronic Fatigue support services
Full Story: https://www.rnz.co.nz/national/programmes/checkpoint/audio/2018859506/long-covid-adds-strain-to-chronic-fatigue-support-services Long Covid has added strain to support services for those suffering from Chronic Fatigue Syndrome, amid calls for the condition...
RNZ: Getting chronic fatigue recognised as an disability
Full story: https://www.rnz.co.nz/national/programmes/afternoons/audio/2018859472/getting-chronic-fatigue-recognised-as-an-disability A petition being read in Parliament today is urging the Government to recognise chronic fatigue as a disability in order to be...
Health Navigator
Long-Term Conditions Virtual Forum 2022 Recorded On 11 Aug 2022 11:30 AM Recording can be found here: HEALTH NAVIGATOR The ongoing burden of long Covid will be one of this generation’s disability challenges, Paula Tesoriero, the Disability Rights Commissioner...
STUFF: ‘Be your authentic selves’: man’s final words spur fund to tackle chronic fatigue syndrome
A man’s final words have inspired a dedicated fund to tackle a debilitating health condition. Zascha Mann died in 2021 after a long struggle with chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis. His poignant final message urged people to...
Stuff: Chronic fatigue sufferers call for condition to be reclassified as a disability
ME / CFS is currently classified as a chronic illness which creates limitations with the support people effected by the illness are able to access. This week the Associated New Zealand ME Society submitted a petition to Parliament calling for ME / CFS to be...
Newsroom: The rolling maul of Long Covid
Tens of thousands of New Zealanders have Long Covid. Soon, they'll seek care from a crunched health system unequipped to help them and financial support from a Government which has closed its wallet, Marc Daalder reports This is not just a health crisis, set to induce...
Stuff: Long Covid will be one of this generation’s disability challenges – Commissioner
The ongoing burden of long Covid will be one of this generation’s disability challenges, the Disability Rights Commissioner says. Many people with long Covid are likely to meet the “definition” of disability, Tesoriero said. Support needed to be based on need, not the...
RNZ: Long Covid short on Research
https://www.rnz.co.nz/programmes/the-detail/story/2018807667/long-covid-short-on-research From The Detail, 5:00 am on 12 August 2021 "Otago University’s Christchurch campus will look at 3,000 New Zealanders to see if they have been exposed to Covid and have developed...
Stuff: East Auckland physician’s quest to demystify debilitating illness
Howick physician Rosamund Vallings speaks to Meghan Lawrence about her new book The Pocket Guide to Chronic Fatigue Syndrome/ME. Full article can be found here: Stuff: East Auckland physician's quest to demystify debilitating illness
Online hope for Eastern Bay community
Posted in 'The Beacon' Ebony Whitaker has taken his first tentative steps into a new life this week, after becoming unwell in his early twenties with the devastating chronic illness Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome. Whitaker has started an...
Local Focus: Living with ME / Chronic Fatigue Syndrome
"Chronic Fatigue doesn't do it justice." Made with funding from NZ On Air. Original Video and Article can be found here: NZ Herald By: Gavin Ogden Video Journalist, Tauranga, NZH Local Focus May 12 marks international ME Day, a day to promote awareness of the...
ME/CFS new information for General Practitioners.
There has been a flurry of activity in the media recently with Prof. Warren Tate, Dr Rosamund Vallings and others speaking with the media about new research in ME/CFS. The interest of the media has been piqued by Long Covid Syndrome which Dr Vallings suggests maybe...
Bay of Plenty Times: $10,000 BayTrust grant offers lifeline to chronic illness charity
Original article can be found here: NZ Herald 18 Jan, 2021 10:08 AM3 minutes to read CCIS members and staff. Photo / Supplied Bay of Plenty Times A Bay of Plenty charity that helps hundreds of locals cope with chronic fatigue and pain will receive a $10,000 grant from...
Sunlive – Living with chronic illnesses a daily battle
Article Written by Laura Thomson-Bache at TECT and Sunlive: Original can be found here: https://sunlive.co.nz/news/251026-living-chronic-illnesses-daily-battle.html There are tears in Arlene Olson’s eyes as she describes the past few years she’s been through. “My...
Local Focus: May is ME/CFS awareness month, so what is it?
VIDEO and Original article can be found here: https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12331040 By: Nathan Morton Video Journalist, Rotorua, NZH Local Focus [email protected] @NMortonOfficial While May has been significant for all sorts...
SunLive: ‘My life is lockdown’ – Tauranga ME sufferer
Article can be found here: https://www.sunlive.co.nz/news/242216-my-life-is-lockdown-tauranga-me-sufferer.html Completing daily tasks like getting out of bed, showering, cooking a meal is a “full-time job” for a Tauranga woman battling with chronic fatigue syndrome. ...
Local Focus: The heart-breaking experiences of mothers with ME
https://www.youtube.com/watch?v=14oT6mi8PVU "My little boy he just... It was really hard." The heart-breaking experiences of mothers with ME. Made with funding from NZ On Air. Full story can be found here: NZ HERALD Holly Rinii lives in Kawerau with her partner and...
The Beacon: Asking for help – Suzanne’s Story
Original Article can be found here: https://thebeacon.co.nz/2019/05/asking-for-help-suzannes-story/
SunLive: When ‘the horrible monster’ called on Kaye
SunLive article and video can be found here: https://www.sunlive.co.nz/news/206191-when-horrible-monster-called-on-kaye.html “Yeah, yeah, we know that.” Bev Dickson has just been reminded of some desperately dark times in her daughter’s 30-year struggle with ME,...