07 281 1481 or 0800 224 787 or Text 022 658 0251 [email protected]

CCI Support Blog

The CCI Support Blog is a look at life with Chronic Illnesses written in an informal or conversational style.  If you would like to contribute to this blog, please contact your Health and Wellness Facilitator.

“The Rongoā of Presence” – A Poem by Phil

There is a quiet strength in being with what is. Not to fix or rush, but to simply acknowledge. This presence is a kind of rongoā (medicine) — soft, patient, and deeply human. 🌙 May you find comfort in your capacity to sit with truth, and return to yourself...

Through the Grapevine – October 2025

As some of you may remember from previous blogs etc. Rachel Riggs’ cookbook is shaping up to be an uncomplicated, allergen-aware cookbook. After a recent catch up, Rachel who has been living with ME/CFS for 21 years -- the last twelve of them housebound -- really...

“The Trying Place” – A Poem by Phil

You’re trying. Of course you are. That’s what you’ve always done. Trying to feel better. Trying to be present. Trying to do it right. Trying not to try too hard. (That one’s tricky.) You carry so much hope in your effort. But maybe it’s time to rest the effort, too....

Mindfulness Matters

By Tania Recently I’ve been taking a deep dive into mindfulness. Mindfulness can mean different things for different people, but for me it means tuning into what my body is telling me and pausing more often to notice what is going on around me. Interestingly, I am...

Severe ME/CFS – Writing by Raquel E. Parackal

ME/CFS is the merciless unravelling of your humanity — where even the simplest acts, like speaking, sitting up, or thinking, become impossible mountains to climb. In its severe form, it traps you in darkened rooms, silences your voice, and steals the very sensations...

AGM 2025

AGM ONLINE - Saturday 13th September 2025 at 10.30amDocuments for the AGM are available belowThe changes to the constitution include changing the words Executive Committee back to Board.Proxies If you are unable to attend the meeting, you may appoint a proxy to attend...

”Meeting Fear” A Poem by Phil

The fear came—that’s what fear does sometimes.It arrived like weather—uninvited, real. It wasn’t mine to control.But how I met it—that was mine. So I paused. Yes, I flinched at first.Old habits stirred.But then I remembered—I could choose to stay. I didn’t need the...

Translate »